An open letter to Donald Trump about Duchenne muscular dystrophy

Published



Dear President Donald Trump,

My name is Kelly Stacy. I am a mother of four sons, two of whom, Elijah and Kai, are still living with Duchenne muscular dystrophy, a rare and fatal disease that steals their ability to walk at the earliest of ages, their independence by their teenage years, and their life by their 20s.

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